“Die rather than live in CHSLD”

«Mourir plutôt que de vivre en CHSLD»

Raymond Bourbonnais, a resident of the CHSLD de Valcourt, wanted to denounce its conditions of life before they receive medical help to die Thursday.

December 4, 2019 4: 00 am

Updated to 9h49

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“Die rather than live in CHSLD”

«Mourir plutôt que de vivre en CHSLD»

Melanie Christmas

The Forum

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The report Denounce before dying published on Saturday in our pages, has elicited several reactions. Several of the comments from people in health or suffering from degenerative diseases were going in the same direction: rather die than to end their days in a CHSLD.

In the report that Denounce before dying, Raymond Bourbonnais, a resident of the CHSLD de Valcourt, who will receive medical assistance to die on December 5, complained of his conditions of life. It was a question of extreme heat in the summer, delay in the exercise of care, lack of residents ‘ privacy and physical and sexual abuse repeated. Are caused or worsened by a lack of key personnel.

READ ALSO: Denounce before dying [VIDEO]

The report Denounce before dying published on Saturday in our pages, has elicited several reactions. Several of the comments from people in health or suffering from degenerative diseases were going in the same direction: rather die than to end their days in a CHSLD.

The example of a night of September, when no care attendant (PAB) was in a position had been given. A stove had been delegated to provide this feature.

After he claimed that the stove, which has acted as a COP, had the skills to do so, the CIUSSS of the eastern Townships CHUS retracts. “In fact, the information that I had been passed to the effect that the employee of the kitchen was also a formation of COP was wrong. It is only this morning (Monday) I was informed that the manager who gave me this information had misinterpreted the evidence had been shared, ” said the assistant to the director of communications at CIUSSS of the eastern Townships CHUS, Annie-Andrée Émond, ensuring, however, have shared this information in good faith.

During the night, the presence of three employees is required.

“During the hours where neither the nurse-auxiliary, nor the COP were not present, we actually asked a clerk at the food stand to ensure a presence. Thus, if there had been an emergency situation requiring an evacuation, we would have been able to ensure the safety of users “, she adds.

Following the publication of the report, The Tribune had received information that the personnel who have been called as a replacement did not have the training and qualifications to take care of people highly mortgaged.

«Mourir plutôt que de vivre en CHSLD»

Raymond Bourbonnais

SPECTRUM MEDIA, JESSICA GARNEAU

“The sad reality was that in the morning, only a minority of the 44 patients had their panties incontinence changed. The other bathed in their urine, and their dung “, reported the source, wishing to remain anonymous.

“The replacement staff was confirmed by the co-ordinator of care. This was a planned decision and not a last minute decision or a measure, called the emergency, ” adds the same source.

Furthermore, this source says that the nurses and the nursing staff are afraid to report for fear of retaliation. “Reports, accident and incident are destroyed, situations imposed against the code of ethics. “

The direction of the CIUSSS of the eastern Townships ensures that these assertions do not reflect the reality. “The destruction of incident reports or accident is not a practice tolerated within our organization. On the contrary, the reporting of incidents or accidents, is encouraged in order to allow the implementation of a process of continuous improvement of the performance “, replied the direction of the CIUSSS of the eastern Townships CHUS.

The responsible minister is reacting finally

The Tribune has re-engaged the minister responsible for Seniors and caregivers, Marguerite Blais, who did not wish to react in the folder last week, for his opinion.

“We hear the cry from the heart of mr. Bourbonnais and are very sensitive to his situation. Our government is working to ensure that the conditions of life of people living in NURSING homes improve. We develop the first Policy for hosting and long-term care the history of Québec, we invest heavily to hire and take care of the staff, and have several projects of renovation and reconstruction of CHSLD old, in addition to build 2600 new places in the houses of the elders and alternatives “, was finally expressed in writing, Marguerite Blais, in response to the text Denounce before you die.

According to the most recent data, dated march 31, 2018, there were 36 671 users in a CHSLD public and private institutes in Quebec.

For the same year, the estimated cost of average per day was of $ 253, for a total of 92 238 $ per year. The cost per day to the State calculated by excluding the contribution from accommodated adults is estimated to be $ 203 per day, that is to say, 74 017 $ per year. The proportion assumed by the user, therefore, is 19.8 %.

In the region, there are 2100 beds regular, long-term care in NURSING homes the CIUSSS of the eastern Townships — CHUS. If we add the number of beds in addition to meet the actual needs, we have approximately 2300.

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«Mourir plutôt que de vivre en CHSLD»

Archives the Forum

Suffer from the disease or living conditions ?

“I think it is important not to confuse the impact of the disease versus one of the conditions of life, lack of hope on the desire to die. When I read the story on Mr. Bourbonnais, I mean a person who wants to leave intolerable living conditions and have no hope that these conditions will improve. The solution to eliminate suffering is to ask for medical help to die (AMM). Of course, I respect 100% the decision of the mister and I value at the maximum of its right of self-determination, ” says the professor and researcher at the centre of excellence on aging of Québec’s CIUSSS of the Capitale-Nationale, Philippe Voyer, which, however, remains bothered by the situation.

“Have we really created the marketing authorisation for such a situation? Are we to understand that if we are not able to offer good living conditions to the residents, the WMA is a viable option? “, he asks.

Jonathan Marchand, president of Coop Assist, a co-operative quebec for independent living, agreed that it is necessary to address the root of the problem : the lack of adequate support. “The origin of suffering is largely the lack of support, not necessarily the disability,” notes Jonathan Marchand, a former engineer forced to live in a CHSLD, as it is in a situation of dependency is vital for breathing and is in need of medical assistance.

“In the community of persons with disabilities, these situations (such as those experienced by Mr. Bourbonnais) are common. Those who are familiar with the institutional reality of the CHSLD and the other does not want to go there and often prefer to die. Suicides are common. And those who are not educated go there often just to see the horror of their new reality. This is notably the case of John Truchon who has obtained a court order to have access to medical help to die recently “, adds Mr. Merchant, who is convinced that Québec must develop alternatives that respect the rights of the individual and ensure that each person retains control over his life.

Mr. Merchant calls into doubt the concept of “self-determination” in a case like that of Mr. Bourbonnais. “Is it that one can speak of self-determination when the State provides us with often do not have the opportunity to continue to live with dignity in the community, we are compelled to live in institutions, which deprives us of our fundamental rights and freedoms, makes us vulnerable and makes us suffer all sorts of violence?” he asks.

“This is not self-determination, there is no real choice. It is either to continue to suffer the unimaginable at the hands of the State or death, ” says Mr. Marchand. Melanie Christmas

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«Mourir plutôt que de vivre en CHSLD»

Jean-Pierre Ménard

Archives Press

A systemic problem, according to the lawyer Jean-Pierre Ménard

“Stories like that of Raymond Bourbonnais, it’s unfortunate, but I hear throughout the week. They are all as poignant each other. It is miraculous that the elderly and their relatives do not complain more. They are afraid of retaliation, ” said lawyer Jean-Pierre Ménard.

The specialist in health law regrets that the government of Quebec has cut a billion from health care between 2014 and 2017. “And now that the government is making a surplus of three or four billion, it does not return the money from where he took it, and prefer to make gifts here and there. Also we are trying to recruit staff, but the strategy used is not effective, ” says mr. Ménard, who is convinced that the problem is systemic and that the approach to older people needs to be rethought.

“But the political will is not there “, he laments, adding that the cases of physical assaults or sexual are common in NURSING homes.

In addition to the lack of staff, lack of stimulation is a problem. “There is a lack of people to organize activities. So that NURSING homes are very poor in stimulation as well as in the special care residents need. “

For the development of premises and the improvements needed, the problem is not new, according to mr. Ménard. “It speaks of the problems of air-conditioning, in particular, for years. This is appalling living conditions “, he adds.

The offer of service is not responding to the demand in Quebec. “We are talking about approximately 8000 people who are waiting for a place in a CHSLD. “

Recall that mr. Ménard has represented Nicole Gladu and Jean Truchon in their legal battle to have access to medical help to die even if they were not at the end of life. “More people will have access to medical assistance to die at the beginning of march, 2020, upon the entry into force of the amendment of the law “, reports the lawyer. Melanie Christmas

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