Despite the hardships overcome in recent months, the couple is delighted now to be able to hope to see their daughter, Eva-Rose to grow up normally and healthy.
January 11, 2020 4: 00
Eva-Rose is reborn thanks to his parents
Little Eva-Rose has only 9 months and already she has spent a third of his life in the hospital. Thanks to a liver transplant from his dad Dominic Levesque, Eva-Rose should be able to celebrate its first anniversary in full health, the house and well surrounded by his parents.
Born on April 1, 2019, the first health problems of the small have been observed then that she was only four months.
“This is a nurse that we had referred during his vaccine, since it was a jaundice that has not abated over time. But otherwise, it was a normal child at the level of its development and we were not really indicators. A given moment, we began to worry, because the jaundice was not, ” says his mother, Annie-Pier Charron.
Since its birth on April 1, 2019, Eva-rose has already spent a third of his life in the hospital.
The nurse referred the family to Dolbeau-Mistassini at the CHU de Québec-Université Laval. From there, Eva-Rose was transferred to emergency at the Centre hospitalier universitaire Sainte-Justine.
“The disease she had, it is the atresia of the biliary tract and it affects one child in 15 000 to 20 000. It is still rare, but Sainte-Justine knew it. Normally, there are certain symptoms in the child, but in our case, it was atypical, so we couldn’t really be in doubt, ” says the father.
The presence of atresia of the bile ducts so that the duct from the liver to the intestine deteriorates, which prevents the liver from draining bile. In more rare cases, such as that experienced by Eva-Rose, a liver transplant is the last option to ensure its survival.
The girl was diagnosed with a very rare condition, biliary atresia. In his case, only a liver transplant could ensure its survival.
A gift, two donors
And so the parents enrolled their daughter on the waiting list so that she can have the transplant a new liver. As the lack of organ donors in this age group is the main obstacle for the liver transplant, Annie-Pier had taken the steps to be a live donor.
Unfortunately, another bad surprise was waiting for the parents. At the time when the transplantation was to take place, an anomaly detected on the liver of Annie-Pier made the transplant impractical.
Fortunately for them, Dominic could also be a living donor for her daughter. On September 12, 2019, the transplant took place and everything went well. Even if mom, dad and small have all had to live through a period of convalescence, they are all back at home, toasty warm to the north of lake Saint-Jean, Dolbeau-Mistassini. Everyone is well now !
Now, at age 9 months, Eva-Rose smiles and it is in full health.
COURTESY, MARIELLE LAVOIE
The last few months have allowed the couple to see that the quebec health care system was still effective in this kind of situation, the ones who had to stay in different hospitals for some time.
“We had talked about it several times together, as we said often, we hear a cry, or that we are whining after the health-care system. But when we fall more in there full-time, one realizes that one has just positive to say about the system, ” says Dominic Levesque.
Abundant in the same direction, the mother adds that it is the whole of the hospital staff who has made sure everything goes well and that Eva-Rose could continue his life in full health.
In recent months they have experienced in hospitals have enabled the couple to walk together in a positive way. Parents want to encourage now people to sign their card to allow for organ donation.
COURTESY, MARIELLE LAVOIE
“We consider ourselves lucky to have received care like that. The staff of the hospital, it became kind of like our family time that we were there, because we did not have the right to visit and our family was away. There is nothing to say negative about the care that one has had. Yes, there is paperwork and deadlines, but it was to ensure our safety at all. They worked for us and wanted to save it. Even if it is very heavy, the process to be a living donor, they have managed to simplify it and to speed up the process, otherwise we would not have had time to save our daughter. “
“ONE DONOR CAN SAVE SEVERAL LIVES “
“Check your sticker and affix it to the back of your insurance card “, would probably be the message that the couple would like to launch to the population as a whole.
“Our workhorse now, it is the donation of organs. We want to educate people that this kind of story can happen in any family, ” admits the father of Eva-Rose, Dominic Levesque.
“My card has always been signed and this is the first thing I do when I get my new card. Our family and our relatives are also made aware of, but we want to reach the people who know us, a little less for that, in their turn, they sign the authorization for donation of organs, ” he adds.
The father believes that his message must be heard by the largest possible number of people. “One donor can save several lives and also make the difference for many families. “
The mother of the small, Annie-Pier Charron, share to see all these children waiting for a transplant has affected particularly, as a single gift can change many lives.
“For example, in our case, with only one liver, it is possible to save five to six people. We saw lots of children waiting for an organ donation and as we have seen, the entire staff discusses the entire process in the greatest of respects. “
There are three ways to signify your consent for the donation of organs and tissues. The first and most easy application simply sign the sticker and put in on the back of your insurance card.
The other two methods are to register your decision, or at the Registre des consentements au don d’organes et de tissus of the Régie de l’assurance maladie du Québec (RAMQ), or in the Registre des consentements au don d’organes et de tissus of the Chambre des notaires du Québec.
These last two ways are more advantageous, because they are more durable in time, they do not need to be renewed and they are available at the right time by authorized personnel.
AN EVENT THAT HAS MADE YOU STRONGER
“Mom gave her life and dad has extended giving it a second life “, admits candidly Dominic Levesque, speaking of his daughter Eva-Rose.
He is foreman in a mine in the North and she is a teacher at the Commission scolaire du Pays-des-Bleuets.
Both agree that the last few months have changed their lives forever.
“It’s been a household in our life priorities. We realize that health, it is often taken for granted, but that ultimately, it is extremely fragile. The life is hanging by a thread. We go out of it even stronger, ” said the father.
‘One is lucky to be alive finally, because we have seen a lot of people dying there. Some parents have lost their child. From our side, we are lucky because we left with living. We know very well that it is a privilege to be alive and that’s what it is for everyone, ” concludes Annie-Pier Charron.